Insurance Approved

It seems the last big hurdle has been overcome as our Insurance has been approved by the clinic, all that is left to do is schedule the date.....more to come.
-John

Moving right along...

After over a year of patiently waiting things are quickly progressing in our efforts to get Courtney tested and potentially treated for CCSVI, aka the Liberation Procedure. I assume at this point if you're reading this blog you know what the Liberation Procedure is; however, for good measure here is a little reference for ya: CCSVI Alliance - you can find just about anything you would want to know through this site, and if you are looking for another great place to donate I highly recommend the CCSVI Alliance.

This is a mixed bag of emotion from my (caregiver, husband, best friend) perspective. I'm excited and hopeful yet extremely cautious because I've seen the emotional stress and depression when hope is shot down. When you have a non-curable disease that is pretty much guaranteed to progress at some unknown rate its emotionally saving to have a glimmer of hope somewhere to hold onto. CCSVI has been that hope for a while now, the ace in the hole that we hope will help us win a hand in this crazy poker game of Multiple Sclerosis.

We hope for even the slightest symptom relief, just being able to cook dinner without getting exhausted would be a big win; however, the big prize is always in the back of my mind. What I wouldn’t give to see Courtney walk again with more ease…

Just waiting on Insurance approval and we’ll be setting the date for the testing/procedure, booking flights and hotel and will officially be set. Thanks so much to all of you who have pitched in with a few dollars here and there to make this trip possible for us. We’re still gladly accepting donations, good thoughts, prayers, positive vibes and anything else you want to send our way.
Much love to you all.
-John

CCSVI on NPR

http://www.npr.org/2011/01/31/133247319/doctor-challenges-cause-of-ms-and-treatment&sc=nl&cc=es-20110206

just click the link to listen to or read the story. nice overview.

Jet stalks the pooping Chewla

backyard sky

My First Post

So, my first post is lazy. John thinks I should post some writing, so here's a short story I wrote for an NPR contest. They supplied the first and last lines and the story had to be under 600 words. To read other entries go to: http://www.npr.org/series/105660765/three-minute-fiction

Enjoy!

Some people swore that the house was haunted. Most still do. They’re right. I should know. I'm the one who haunts it. Although I know the whole rattling around the house by oneself thing sounds lonely, I really don't mind. Most of my life was spent alone, so why should my afterlife be any different?

Actually, all the time alone is probably the reason I'm still here. So much time spent in this house. I think I became bonded to it somehow. After the fall down the stairs, I expected to go somewhere. I don't know where. Maybe someplace with bright lights and harp music. But instead, I'm just here. The same place I've been since I moved in 37 years ago.

Don't get me wrong. It's not that I was agoraphobic or anything. I did leave the house. Just not very often and usually not for long periods of time. I went to the grocery store to pick up the food I had ordered. To the library to check out the books I had reserved. To the local diner to get the meal I had ordered to go.

So this house became my life. And now my afterlife is this house. I am bound to it. Couldn't leave if I wanted to. Don't ask me why. The expected magical answers never appeared. I wasn’t given a Handbook for the Recently Departed.

I hadn't been dead long when the house went on the market. I knew it wouldn’t stay there for long. A real estate agent showed the house to numerous people who seemed unimpressed. Then to a nice older gentleman who was quite interested. What if he moved in? Could I handle living with someone after all this time alone?

The next week, my fears were realized. The realtor’s sign that was stuck in the yard disappeared one day and a moving van showed up the next. I appraised every piece of furniture as it came through the door. At least this guy has good taste, I thought. Antiques and solid furniture. None of that flimsy IKEA stuff.

Despite my apprehension, over the next few months I adjusted to having a roommate. To my total amazement, the companionship was kind of nice. If you could call it that. It's not like we talked or anything. However, I could tell sometimes he thought he wasn’t completely alone. He would occasionally get a chill when I passed by and he’d look around or call out to the empty room, "Is someone there?"

We lived together, mostly unbeknownst to him, for three years. As it turned out, he was a homebody also. He didn't watch much television. But, he had a huge collection of blues records which I grew to love. He spent hours reading. Sometimes I peeked over his shoulder but it seemed to make him uneasy.

Halfway through that third-year, the man returned from a doctor's visit. He dragged through the door. Apparently, he hadn't received good news. Over the next few months, the man grew feeble. He took pills for a while but they only seemed to make him sicker.

One night as I watched him, he began to gasp. I moved closer. He looked at me. "Are you an angel?"

"No. I don't think so. You can see me? And hear me?“

"Yes," he replied. "What happened?"

"I think you're dead. I guess I should welcome you."

I explained what I could, which wasn't much. He took the news surprisingly well. Almost as if he had been waiting for it.

Nothing was ever the same again after that.

Long time no blog

Hey everyone, just a quick note to say we're still around and hope to be making more frequent updates to the blog. Decided to make this about whatever we feel like at the time, Courtney will be putting up some pictures and videos, and who knows perhaps if you beg her she'll start putting up some of her fiction writing......

Until next time, farewell, and welcome back.

-John