After over a year of patiently waiting things are quickly progressing in our efforts to get Courtney tested and potentially treated for CCSVI, aka the Liberation Procedure. I assume at this point if you're reading this blog you know what the Liberation Procedure is; however, for good measure here is a little reference for ya: CCSVI Alliance - you can find just about anything you would want to know through this site, and if you are looking for another great place to donate I highly recommend the CCSVI Alliance.
This is a mixed bag of emotion from my (caregiver, husband, best friend) perspective. I'm excited and hopeful yet extremely cautious because I've seen the emotional stress and depression when hope is shot down. When you have a non-curable disease that is pretty much guaranteed to progress at some unknown rate its emotionally saving to have a glimmer of hope somewhere to hold onto. CCSVI has been that hope for a while now, the ace in the hole that we hope will help us win a hand in this crazy poker game of Multiple Sclerosis.
We hope for even the slightest symptom relief, just being able to cook dinner without getting exhausted would be a big win; however, the big prize is always in the back of my mind. What I wouldn’t give to see Courtney walk again with more ease…
Just waiting on Insurance approval and we’ll be setting the date for the testing/procedure, booking flights and hotel and will officially be set. Thanks so much to all of you who have pitched in with a few dollars here and there to make this trip possible for us. We’re still gladly accepting donations, good thoughts, prayers, positive vibes and anything else you want to send our way.
Much love to you all.
Ocrevus—My Latest Attempt to Stem the Tide
2 weeks ago